Being back in the community means that you’ve been discharged from hospital and are now in the care of your local NHS CCG or NHS Clinical Commissioning Group. They used to be called your local NHS PCT.
It doesn’t actually matter what they’re called all you need to know is that after discharge they control the way your person’s clinical treatment, care and rehabilitation is commissioned IE bought and paid for. They also determine who delivers it.
Even when they can’t do it themselves click here
Here’s our advice
Don’t assume they will know about your person or if they do that they will know enough about your person. (We’ve had personal experience of both)
If your person has complex needs expect to have to explain many times to many people what the medical problems are and to fight for appropriate assessments, treatment, support and care. Many CCGs are limited in both resources and personnel and won’t have the right people or tools to do the job.
Don’t accept treatment, care and support that isn’t appropriate EG designed for someone else.
Don’t accept anything that isn’t working and as you know your person better than anyone you soon realise if things are going wrong. Trust your instincts.
Ask for a referral outside of the Trust if the treatment, care and support your person needs isn’t available locally.
Don’t accept ‘postcode lotteries’ or ‘budget cuts’ as an excuse. Your person has a right to access appropriate care and treatment.
If you’re having lots of problems you might want to talk to a solicitor click here
If your care package isn’t working treat it like a broken appliance. We call it the Fridge Principal