headsmatter | Once you’re home
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Once you’re home

Your person’s actual care and rehabilitation will usually be provided by two separate teams of people.

 

A community care team that gives clinical care and support delivered by NHS therapists and nurses who work alongside your GP practice and a care company that gives support delivered often by non-qualified and non-specialist care workers through the local authority.

 

The community clinical care team is managed by the NHS Trust for your area.

 

The care company is usually employed by Social Services. Unless you have an Individual Budget to pay for your care and support and you have sourced the care company yourself or through a broker. What does this mean

 

The clinical care team should be put together by a case manager who assesses your person’s specific needs and draws information from hospital notes and reports.
The care company will be asked to put together a specific package. Brain injured people usually require a complex needs package. It’s important that you get the right one as care companies tend to assume the care package is domiciliary and not all local authorities specify.  ‘Dom care’  is a package usually put together for older people who require more practical help with household chores and personal care. People living with brain injury usually need a combination of complex care and domiciliary.

 

There is a best practice guide to care for people living with brain injury but this is regarded as the ‘gold standard’ and expecting to get it will leave you disappointed. Don’t accept bargain basement and bits made up from leftovers meant for other people but be realistic about what is available.
Care for people living with brain injury is one of the least understood by practitioners away from Neuroscience centres and you’ll more than likely know more about it than any CCG manager or Social Services department lead.

Many people living with brain injury qualify for Continuing Health Care which makes life much simpler. However the application process is long and difficult and you will need support to be successful. We can help.

 

Click here to find out about CHC and the funding

This may also be the time to apply for a Personal Health Budget and in exceptional circumstances IFR funding  to find out more click here

 

Our advice

 

Don’t accept care packages designed for someone else IE Stroke patients. Strokes can be caused by brain injury and do cause brain injury but they’re not the same as Acquired Brain Injury.


Don’t accept postcode lotteries.


Don’t accept that services aren’t “available in your area”. You have the right to be referred outside your NHS Trust and local authority and you can also choose where you want to receive any treatment. However CCGs; the organisations that hold the NHS purse strings for community clinical care and treatment can put up a fight and resist your efforts. Money is very tight and if community teams in your Trust can show that they can deliver support your CCG is unlikely to fund you going somewhere else. They have also been known to insist that people accept services not suitable or appropriate.

You have the right to choose some NHS treatment care and services so to find out more Click here

 

If you’re not getting anywhere Contact Us


Make sure that your carers and the care company know what to do in an emergency IE They have basic first aid training. 


Make sure that you have a copy of your person’s care plan, any assessments and reports. Find out why this is important


Don’t accept poor treatment, care and support once you’re out of hospital. If your instincts tell you something isn’t right or not working then sort it out. Click here to find out how

 

 

” I was horrified to learn that the care company didn’t have to have basic first aid skills. My son has seizures and if he’d had one when they were with him none of the care workers knew how to put him in the recovery position. I had to type a list of instructions and put it on the wall. When the supervisor did a spot check she took it down and said that they weren’t “insured to do any of that.” I got rid of them straight away but it’s been hard finding a company that can meet my son’s needs.”  Anon

” I made a complaint to the care company about one of the carers who turned up dirty and smelling of sweat. She clearly hadn’t slept and said she was “hanging” from the night before. I was about to go out of the door to work but I called in sick. The care company said they “couldn’t believe what I was telling them” and it wasn’t long before I got a letter saying they were giving me notice. I panicked and asked why. They said they didn’t have to give a reason and even though the social worker contacted them, they refused to back down. We ended up with me having to take a week off work until we found someone else.”  Pam